Pirates Of The Curry Bean

The boys and girls of St Patricks Primary School in Greenock are busy rehearsing for their production “Pirates Of The Curry Bean“, to be performed on the 12th of June at 7pm.       You can read all about

Posted in Events, News

South East Family Meet-up

From Shereener First of all a big thank you to everyone who came to the rainy day family meet up on 24/11. I think everyone had a great time. My older children were reluctant to come but had a fabulous

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Let’s meet up in Manchester on Saturday October 6th

Calling all UK based members – Let’s meet up in Manchester on Saturday October 6th Having had such a successful Conference in Milan in July, those of us who were lucky enough to attend decided that we wanted to meet

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The Wall Ultra Run 2012

On the weekend of 23 and 24 June 2012, I set out on a 69 mile run to raise awareness and funds for our charity.  This is my story. The Wall Ultra Run. 69 miles. On Saturday morning, 23 June,

Posted in 2012, Events, News

Chromosome 18 Christmas Party

On a very snowy 16 December, over 200 people turned out to support the Chromosome 18 Research and Registry Christmas Party. The event was organised by our very own Cheryl Donlan, who had devoted a large part of her (very

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New Patron Announced

Dr. Chris Steele, MBE, Becomes Patron Of Chromosome 18 Registry and Research Society Europe. TV Doctor and freelance physician, Dr Chris Steele has become the patron of The Chromosome 18 Registry And Research Society Europe.  His two year old great

Posted in Committee, News

Sara’s Fundraiser

My Summer Party Bandaoke Fundraiser by Sara Jackson It was while sitting at the first Ch18 European conference in Glasgow being told about the Ch18 Europe’s accounts, that I decided I had to do a fundraiser for our small but

Posted in Fundraiser, News

Some of This Years Fundraisers

Just Some of The amazing Fundraising Events From This Year So Far Tom Wilson recently had all the hair on his head shaved off, and raised an amazing £820..25 for Chromosome 18 Europe. An incredibly brave thing to do, especially

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Rare Disorder Separates Twins At School Gates

From STV. Click the link below to see their sponsors message, then watch the news item …….. http://news.stv.tv/scotland/north/266383-rare-disorder-separates-twins-at-school-gates/ Twin sisters from Aberdeen Erin and Neve Mortimer have been inseparable since birth, but when school starts on Thursday they will be

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Tom’s Fundraiser

Thank you to everyone who sponsored me. We have raised £820.25 for the Chromosome 18 Registry Europe. You are all amazing and I am happy that together we have done something special to help some very special people. Thanks again

Posted in Fundraiser, News