LATEST INFORMATION We are delighted to open the ROOM BOOKING CODES for the 6th Chromosome 18 Europe Family Conference in the Rome Marriott Park Hotel, Rome, Italy 24/26 July 2020 The conference will start on the Friday and Crèche and…
Sunflower Lanyard Scheme
Yesterday on BBC Radio 5 there was significant discussion about this scheme. The scheme started at Heathrow Airport Passengers with Additional Needs/Hidden Disabilities can wear this lanyard or pin to make the staff aware of their hidden disabilities, allowing their…
Posted in 2019
Yesterday on BBC Radio 5 there was significant discussion about this scheme. The scheme started at Heathrow Airport Passengers with Additional Needs/Hidden Disabilities can wear this lanyard or pin to make the staff aware of their hidden disabilities, allowing their…
European Commission approves 23 European Reference Networks
On 15th December the Board of Member States of ERNs voted to approve all 23 ERN proposals submitted under the first wave (the 24th proposal, submitted under the 2nd call, will be assessed early in 2017).
Posted in News
On 15th December the Board of Member States of ERNs voted to approve all 23 ERN proposals submitted under the first wave (the 24th proposal, submitted under the 2nd call, will be assessed early in 2017).
October 2016 Newsletter
November 2016 newsletter with lots of exciting news from the conference and our amazing families.
November 2016 newsletter with lots of exciting news from the conference and our amazing families.
Fundraiser Extraordinaire!
Eve Rushmer, one of our amazing Self Advocates, celebrated her birthday by doing a Skydive in aid of Chromosome 18 Europe.
Eve Rushmer, one of our amazing Self Advocates, celebrated her birthday by doing a Skydive in aid of Chromosome 18 Europe.
Veni, vidi, vici!
Chris and Doris travelled with their two little children from Austria to join us in Rome. This is what they thought.
Chris and Doris travelled with their two little children from Austria to join us in Rome. This is what they thought.
Fundraisers
We could never hope to run our conferences without the imagination and perseverance of many friends and families. All sorts of fundraisers have been held over the past year, from Mount Snowdon Climb, serving teas at concerts, sponsored haircuts, raffled…
We could never hope to run our conferences without the imagination and perseverance of many friends and families. All sorts of fundraisers have been held over the past year, from Mount Snowdon Climb, serving teas at concerts, sponsored haircuts, raffled…
Rome conference latest
Some latest news about attendees.
Some latest news about attendees.
Draft conference schedule
The initial conference schedule has been published.
The initial conference schedule has been published.
Rome conference
The 4th Family Conference is taking place in Rome over the weekend of August 5th to 7th 2016. Below is a link to allow you to book rooms in the hotel and a code to add in order to get our special rate. The…
The 4th Family Conference is taking place in Rome over the weekend of August 5th to 7th 2016. Below is a link to allow you to book rooms in the hotel and a code to add in order to get our special rate. The…
