Feeding difficulties questionnaire

Richard Davison has been working to develop research looking at the feeding difficulties experienced by our children as there is relatively little information on this topic….

Posted in Uncategorized

Conference programme

You can download a copy of the conference program for Glasgow here. It’s only a few weeks away now! Download conference programme

Posted in 2018, Conference

Glasgow Conference 2018

If you are coming to the conference in Glasgow on 22-24 June, please complete your conference booking by clicking on the link here. If you have any questions, please feel free to contact us!

Posted in 2018

Conference Booking

If you would like to stay in the Glasgow Doubletree Hilton over the conference this year, you can book using this link which will give you a discount over the usual room rate. Click here to book

Posted in 2018, Conference

Newsletter – January 2018

You can download the latest newsletter, which contains details of the Glasgow conference in June, by clicking or tapping here.

Posted in 2018, Conference

Virgin Giving

Please consider donating whatever you can afford to help us continue supporting children and adults with Chromosome 18 conditions in Europe. You can donate using credit card or Paypal via Virgin Giving by clicking here.

Posted in Uncategorized

Veni, vidi, vici!

Chris and Doris travelled with their two little children from Austria to join us in Rome. This is what they thought.

Posted in 2016, Conference, News

Rome conference presentations

Some of the presentations from Rome are now available for download.

Posted in 2016, Conference

Gallery is getting fuller

The conference images are finally starting to be put into our gallery. The images were taken by the fantastic Catherine Underhill, and you can contact here directly for larger images and prints. You can reach Catherine at catherine.underhill@btinternet.com  

Posted in 2016, Conference


We could never hope to run our conferences without the imagination and perseverance of many friends and families. All sorts of fundraisers have been held over the past year, from Mount Snowdon Climb, serving teas at concerts, sponsored haircuts, raffled

Posted in 2016, Fundraiser, News