Bonnie is one of the founding members of Chromosome 18 Registry and Research Society (Europe) and in this episode she tell us of her story about her daughter Kathryn who is affected by 18q-. As Kathryn is now over 40…
Bonnie is one of the founding members of Chromosome 18 Registry and Research Society (Europe) and in this episode she tell us of her story about her daughter Kathryn who is affected by 18q-. As Kathryn is now over 40…
This is the first in our Parent Stories, series where I interview Sara Jackson who is one of the management committee members. Sara has been involved with C18 Europe for a very long time contributing in virtually every way since…
We try to provide some information to our members on the 18th of each month and this now includes our podcast. In this episode I am interviewing my daughter Lexie who will be 18 on the 18th Dec and thus…
We are heading back to Rome Dear members and friends. We are planning some changes to the way we structure our Conference. We will look at potential topics and speakers across the lifespan that takes us from babies to adults,…
Yesterday on BBC Radio 5 there was significant discussion about this scheme. The scheme started at Heathrow Airport Passengers with Additional Needs/Hidden Disabilities can wear this lanyard or pin to make the staff aware of their hidden disabilities, allowing their…