COVID – 19 Home Schooling Webinar, 15th July @7:30pm

From your responses to the questionnaire about how you are coping with COVID-19 the number one request for help was help with home schooling. Therefore we are going to run a webinar on the 15th July @7:30pm about home schooling.

Posted in 2020, Events

Chromosome 18 Europe 6th BiAnnual Conference 24th-26th July 2020 (Booking Info)

LATEST INFORMATION We are delighted to open the ROOM BOOKING CODES for the 6th Chromosome 18 Europe Family Conference in the Rome Marriott Park Hotel, Rome, Italy 24/26 July 2020 The conference will start on the Friday and Crèche and

Posted in 2020, Conference, Events

Chromosome 18 Europe Conference 24-26 July 2020 “Living with Chromosome 18”

We are heading back to Rome Dear members and friends.  We are planning some changes to the way we structure our Conference. We will look at potential topics and speakers across the lifespan that takes us from babies to adults,

Posted in 2020

Sunflower Lanyard Scheme

Yesterday on BBC Radio 5 there was significant discussion about this scheme. The scheme started at Heathrow Airport Passengers with Additional Needs/Hidden Disabilities can wear this lanyard or pin to make the staff aware of their hidden disabilities, allowing their

Posted in 2019

2020 Family Conference

Just to let everyone know that we have started the planning for our next conference. Save the date 24-26th July 2020 in Rome. It will be in the same fantastic Marriott hotel as the last time, for those who were

Posted in 2019, Conference Tagged with: ,

Latest Newsletter

Newsletter Spring 2017

Posted in Uncategorized

European Commission approves 23 European Reference Networks

On 15th December the Board of Member States of ERNs voted to approve all 23 ERN proposals submitted under the first wave (the 24th proposal, submitted under the 2nd call, will be assessed early in 2017).

Posted in News