Bonnie is one of the founding members of Chromosome 18 Registry and Research Society (Europe) and in this episode she tell us of her story about her daughter Kathryn who is affected by 18q-. As Kathryn is now over 40…
Podcast 4- Parent Stories: Sara Jackson
This is the first in our Parent Stories, series where I interview Sara Jackson who is one of the management committee members. Sara has been involved with C18 Europe for a very long time contributing in virtually every way since…
This is the first in our Parent Stories, series where I interview Sara Jackson who is one of the management committee members. Sara has been involved with C18 Europe for a very long time contributing in virtually every way since…
Podcast 3 – What it is like to be a sibling – Lexie Davison
We try to provide some information to our members on the 18th of each month and this now includes our podcast. In this episode I am interviewing my daughter Lexie who will be 18 on the 18th Dec and thus…
Posted in Uncategorized
We try to provide some information to our members on the 18th of each month and this now includes our podcast. In this episode I am interviewing my daughter Lexie who will be 18 on the 18th Dec and thus…
COVID-19 Home Schooling Webinar
This, our first, webinar was a great success and many thanks to Claire Harrison from CALL Scotland and Paul Seeman for their help and providing so much good advice and links to a whole range of resources that will be…
This, our first, webinar was a great success and many thanks to Claire Harrison from CALL Scotland and Paul Seeman for their help and providing so much good advice and links to a whole range of resources that will be…
COVID – 19 Home Schooling Webinar, 15th July @7:30pm
From your responses to the questionnaire about how you are coping with COVID-19 the number one request for help was help with home schooling. Therefore we are going to run a webinar on the 15th July @7:30pm about home schooling.
From your responses to the questionnaire about how you are coping with COVID-19 the number one request for help was help with home schooling. Therefore we are going to run a webinar on the 15th July @7:30pm about home schooling.
Chromosome 18 Europe 6th BiAnnual Conference 24th-26th July 2020 (Booking Info)
LATEST INFORMATION We are delighted to open the ROOM BOOKING CODES for the 6th Chromosome 18 Europe Family Conference in the Rome Marriott Park Hotel, Rome, Italy 24/26 July 2020 The conference will start on the Friday and Crèche and…
LATEST INFORMATION We are delighted to open the ROOM BOOKING CODES for the 6th Chromosome 18 Europe Family Conference in the Rome Marriott Park Hotel, Rome, Italy 24/26 July 2020 The conference will start on the Friday and Crèche and…
Chromosome 18 Europe Conference 24-26 July 2020 “Living with Chromosome 18”
We are heading back to Rome Dear members and friends. We are planning some changes to the way we structure our Conference. We will look at potential topics and speakers across the lifespan that takes us from babies to adults,…
Posted in 2020
We are heading back to Rome Dear members and friends. We are planning some changes to the way we structure our Conference. We will look at potential topics and speakers across the lifespan that takes us from babies to adults,…
Sunflower Lanyard Scheme
Yesterday on BBC Radio 5 there was significant discussion about this scheme. The scheme started at Heathrow Airport Passengers with Additional Needs/Hidden Disabilities can wear this lanyard or pin to make the staff aware of their hidden disabilities, allowing their…
Posted in 2019
Yesterday on BBC Radio 5 there was significant discussion about this scheme. The scheme started at Heathrow Airport Passengers with Additional Needs/Hidden Disabilities can wear this lanyard or pin to make the staff aware of their hidden disabilities, allowing their…
2020 Family Conference
Just to let everyone know that we have started the planning for our next conference. Save the date 24-26th July 2020 in Rome. It will be in the same fantastic Marriott hotel as the last time, for those who were…
Just to let everyone know that we have started the planning for our next conference. Save the date 24-26th July 2020 in Rome. It will be in the same fantastic Marriott hotel as the last time, for those who were…
Latest Newsletter
Newsletter Spring 2017
Posted in Uncategorized
Newsletter Spring 2017
