Chromosome 18 Registry and Research Society (Europe)
Registered Charity: SC040399
Home Welcome Conference Information Membership Supporters Fundraising Equipment Contacts Sitemap
Welcome
Welcome to the Chromosome 18 Registry and Research Society (Europe). We are affiliated to the Chromosome 18 Registry and Research Society in San Antonio, Texas, as well as having ties to the associations throughout Europe that deal with general chromosome disorders (such as Unique in the UK).
The Chromosome 18 Registry and Research Society (Europe) is based in central Scotland. It was set up in November 2008 by the grandparents of a small boy with 18q- and the mum of an adult with 18q-. We aim to bring the latest research and information on Chromosome 18 disorders to people directly affected by the disorders, those affected by the disorder - carers, parents, siblings and grandparents - together with the professional clinicians, geneticists, therapists and educational experts who specialise in relevant disabilities.
Who Are We?
The chromosome 18 Registry and Research Society (Europe) is a charity that has been set up to bring European families affected by any chromosome 18 abnormalities together to share information and experiences. Our organisation covers all chromosome 18 abnormalities, namely 18q-, 18p-, ring 18, tetrasomy 18p and inversions of chromosome 18.
Our Aims
We aim to help children and adults with Chromosome 18 disorders realise their full potential, and to promote the normalisation and integration of Chromosome 18 people within their communities.
We plan to do this in several ways, most importantly by having a weekend conference every two years.
Contacts within Chromosome 18 Europe
- Secretary Bonnie McKerracher at secretary@chromosome18eur.org
- Convenor Chris Wilkinson at convenor@chromosome18eur.org
- Treasurer Alistair McLauchan at treasurer@chromosome18eur.org
- Webmaster Kathryn McKerracher at Katiebell18q@aol.com
