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First Name (required)
Last Name (required)
Your Date Of Birth (required)
Your Email (required)
Building Name / Number
Village / City / Town
Preferred Phone Number
Alternative Phone Number
Relationship To The Affected Person (required)
It's meParentRelativeLegal GuardianFriendClinicianResearcherEducationalistOther
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The Parent Network is a list of names, addresses and emails of parents who wish to communicate with each other. It is only available to members who wish to join the network.
18p-18q-Ring 18Trisomy 18Tetrasomy 18pOther
Affected persons Date Of Birth
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