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European Conference 2012, Milan, Italy. |
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Written by Tony Russell
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Tuesday, 03 April 2012 18:52 |
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Over the next few days, we'll be publishing details of the European Conference 2012 in Milan.
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GEORGE AND MATTHEW - CHROMOSOME RING 18 CHARITY WALK UP SNOWDON |
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Written by Administrator
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Tuesday, 27 March 2012 13:16 |
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On 14th April 2012, there are 100+ people meeting at Mount Snowdon, to take part in a sponsored climb up Snowdon. We are all walking up the Llanberis route as we find this is a steady climb! We have organised this walk to raise awareness of Chromosome 18 Registry Europe and also to raise funds to support the charity in order to help affected children and their families find answers through research and each other!!
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Last Updated on Tuesday, 27 March 2012 13:35 |
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Written by Bonnie McKerracher
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Friday, 03 February 2012 21:32 |
Chromosome 18 Registry and Research Society (Europe), Family Conference, Milan Marriott Hotel, Via Washington, 66 · Milan, 20146, Italy
August 3-5, 2012
In just a few months, families whose children are affected by chromosome 18 disorders will gather together again from all over Europe for a weekend to learn, laugh and play together.
Dr Jannine Cody and Dr Dan Hale will be coming from The Chromosome 18 Research Centre in San Antonio, Texas to report on the latest developments. There will be presentations on communication and affected adults will share their experiences.
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Last Updated on Sunday, 12 February 2012 13:01 |
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I'm booked for the 2012 Conference. |
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Written by Sara Jackson
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Friday, 24 February 2012 15:18 |
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I booked my room in the Marriott Hotel Milan today for the 3rd to the 5th August. I did so with a feeling of gratitude that I have managed to find the money to go and feel a part of this virtual registry that has been so important in mine, my son's and our family's lives. I also have a slightly heavy heart, on the back of the sad news of the passing of one of the founders of the Chromosome 18 European Registry, Chris Wilkinson. The man who made it possible for us non-American families to find a way to meet, learn, smile, emote and join together just as the American members do.
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Last Updated on Saturday, 25 February 2012 00:03 |
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Written by Bonnie McKerracher
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Sunday, 15 January 2012 22:06 |
Chromosome 18 Registry and Research Society (Europe), Family Conference, Milan Marriott Hotel, Via Washington, 66 · Milan, 20146 Italy, August 3-5, 2012
It's only 25 week now until the next Chromosome 18 Registry and Research Society (Europe) conference! Families whose children are affected by chromosome 18 disorders will gather together again from all over Europe for a weekend to learn, laugh and play together.
Dr Jannine Cody and Dr Dan Hale will be coming from The Chromosome 18 Research Centre in San Antonio, Texas to report on the latest developments. There will be presentations on communication and affected adults will share their experiences.
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Last Updated on Sunday, 12 February 2012 13:03 |
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