Chromosome 18 Registry and Research Society (Europe)
Registered Charity: SC040399
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Further Information
Below are some of the most informative sites that are related to chromosome 18 and its manifestations.
- Chromosome 18 Registry and Research Society
- This is an excellent source of research and support on all chromosome 18 disorders. Join the appropriate syndrome listserves for the support and information from other parents whose children are affected by the same syndrome as your child.
- Unique
- Unique is a very good source of European related information on laws, other helpful groups and contacts.
- Positive Exposure
- Positive Exposure is an organisation set up by ex-fashion photographer Rick Guidotti that promotes positive images of people affected by genetic disorders including chromosome 18 disorders.
Internal Contacts
- Secretary Bonnie McKerracher at secretary@chromosome18eur.org
- Convenor Chris Wilkinson at convenor@chromosome18eur.org
- Treasurer Alistair McLauchlan at treasurer@chromosome18eur.org
- Webmaster Kathryn McKerracher at Katiebell18q@aol.com