Conference

Friday 5 August 16

The 2016 Chromosome 18 Europe conference in Rome opened on Friday 6th August with a session by Janet Garney from Us in a Bus. It’s the first time that the Family conference has run over three days.

10.00 – 12.00 am Us in a Bus http://usinabus.org.uk/

Workshop outline:

10.00     Introductions

10.15     Introduction to the basic principles of Intensive Interaction

11.05     Video – ‘Learning the Language’ by Phoebe Caldwell

11.35     Trouble shooting – pros and cons of this approach

12.00     Conclusions and handouts.

2.30 – 5.00 pm   Training face to face Us in a Bus

2.00 – 6.00 pm  Registration table open (will also be available on Thursday the 4th from 5.00 pm)

7.00 – 9.00 pm    Welcome from committee members, recognitions/ rewards

Saturday 6 August 16

9.00 – 9.15 am Welcome and introduction by  Jannine and Dan

9.15 – 10.30  am Presentation by Jannine and Dan

10.30 – 10.45 am Break

10.45 – 11.45 am Music Therapy with Nordorf Robbins

11.45 – 12.45 am Launch of European Research Centre

12.45 – 2.15 pm Lunch

2.15 – 3.00 pm Roadmap to full potential: Parents of adults 0-18 experiences

Short break then;

3.00 – 5.00 pm Syndrome breakout groups:

  • 18q,
  • 18p,
  • Tetrasomy 18,
  • Trisomy 18,
  • Ring 18,
  • Pitt Hopkins
  • Grandparents

5.00-6.15 pm

5.00-6.15 pm: Break out sessions for Mums and Dads. Facilitated discussion around the challenges of looking after affected children followed by Cocktails for Mums, Beers for Dads in the bar.

7.00 – 9.00 pm Dinner (Chromosome 18’s Got Talent Show during dinner) followed by disco.

Sunday 7 August 16

9.00 – 9.45 am AGM

9.45 – 10.45 am Dr Vizziello – Sleep Disorder and roundabout to face family disorganisation.

10.45 – 11.00 am Break

11.00 – 11.45 am Dr. Patelli – Communication and speech therapy

11.45 – 12.45 am Self advocates Panel

12.45 – 2.15 pm Lunch

2.15 –  3.00 pm Siblings panel

3.00 – 4.00 pm Wrap up