Fundraising Raffle – Rainbow Round The World Quilt

Our annual Quilt Raffle got underway this past weekend at Loch Lommond, Scotland. Our very own Bonnie McKerracher has produced arguably her best quilt yet, named Rainbow Round The World.  In striking colours, you can’t help but raise a smile

Posted in Events, Fundraiser

Chromosome 18 Europe, Summer Fete at Eden Square Urmston Manchester.

Chromosome 18 Europe, Summer Fete at Eden Square Urmston Manchester. Written by Cheryl Donlan Monday, 26 August 2013 14:54 In a few days time on Sat 31st August 2013, myself and a fantastic group of friends and local businesses will

Posted in 2013, Events

London Triathlon entry for Chromosome 18 Europe

Anthony & Shereener Hudson: I’m fundraising for Chromosome 18 Registry and Research Society Europe. Please help me make a difference by making a donation to my Virgin Money Giving page. To find out more about what I’m doing and why,

Posted in Events, Fundraiser, News

Matty’s Team Supreme

To help raise money for Chromosome 18 Registry Europe Matthew Bates, adult with Chromosome Ring 18 Syndrome, will be doing the Mersey Tunnel 10K run on 9th June 2013. Matthew is being supported by two dads who also have children affected by 18

Posted in Fundraiser, News

Pirates Of The Curry Bean

The boys and girls of St Patricks Primary School in Greenock are busy rehearsing for their production “Pirates Of The Curry Bean“, to be performed on the 12th of June at 7pm.       You can read all about

Posted in Events, News

South East Family Meet-up

From Shereener First of all a big thank you to everyone who came to the rainy day family meet up on 24/11. I think everyone had a great time. My older children were reluctant to come but had a fabulous

Posted in Events

Let’s meet up in Manchester on Saturday October 6th

Calling all UK based members – Let’s meet up in Manchester on Saturday October 6th Having had such a successful Conference in Milan in July, those of us who were lucky enough to attend decided that we wanted to meet

Posted in Events

The Wall Ultra Run 2012

On the weekend of 23 and 24 June 2012, I set out on a 69 mile run to raise awareness and funds for our charity.  This is my story. The Wall Ultra Run. 69 miles. On Saturday morning, 23 June,

Posted in 2012, Events, News

Chromosome 18 Christmas Party

On a very snowy 16 December, over 200 people turned out to support the Chromosome 18 Research and Registry Christmas Party. The event was organised by our very own Cheryl Donlan, who had devoted a large part of her (very

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New Patron Announced

Dr. Chris Steele, MBE, Becomes Patron Of Chromosome 18 Registry and Research Society Europe. TV Doctor and freelance physician, Dr Chris Steele has become the patron of The Chromosome 18 Registry And Research Society Europe.  His two year old great

Posted in Committee, News