European Commission approves 23 European Reference Networks

On 15th December the Board of Member States of ERNs voted to approve all 23 ERN proposals submitted under the first wave (the 24th proposal, submitted under the 2nd call, will be assessed early in 2017).

Posted in News

October 2016 Newsletter

November 2016 newsletter with lots of exciting news from the conference and our amazing families.

Posted in 2016, News

Fundraiser Extraordinaire!

Eve Rushmer, one of our amazing Self Advocates, celebrated her birthday by doing a Skydive in aid of Chromosome 18 Europe.

Posted in Donations, Fundraiser, News

Veni, vidi, vici!

Chris and Doris travelled with their two little children from Austria to join us in Rome. This is what they thought.

Posted in 2016, Conference, News

Fundraisers

We could never hope to run our conferences without the imagination and perseverance of many friends and families. All sorts of fundraisers have been held over the past year, from Mount Snowdon Climb, serving teas at concerts, sponsored haircuts, raffled

Posted in 2016, Fundraiser, News

Rome conference latest

Some latest news about attendees.

Posted in 2016, Conference, News

Draft conference schedule

The initial conference schedule has been published.

Posted in 2016, Conference, Events, News

Rome conference

The 4th Family Conference is taking place in Rome over the weekend of August 5th to 7th 2016. Below is a link to allow you to book rooms in the hotel and a code to add in order to get our special rate. The

Posted in 2016, Conference, News

Rome confirmed as venue for our 4th European Summer Conference

The fourth Chromosome 18 Europe conference will take place in Rome on the 5th, 6th and 7th August. The venue is the Rome Marriott Park Hotel. More details will be available over the next few weeks.

Posted in 2016, Conference, News

Fundraising Raffle – Rainbow Round The World Quilt

Our annual Quilt Raffle got underway this past weekend at Loch Lommond, Scotland. Our very own Bonnie McKerracher has produced arguably her best quilt yet, named Rainbow Round The World.  In striking colours, you can’t help but raise a smile

Posted in Events, Fundraiser