Newsletter – January 2018

You can download the latest newsletter, which contains details of the Glasgow conference in June, by clicking or tapping here.

Posted in 2018, Conference

Conference Booking

If you would like to stay in the Glasgow Doubletree Hilton over the conference this year, you can book using this link which will give you a discount over the usual room rate. Click here to book

Posted in 2018, Conference

Virgin Giving

Please consider donating whatever you can afford to help us continue supporting children and adults with Chromosome 18 conditions in Europe. You can donate using credit card or Paypal via Virgin Giving by clicking here.

Posted in Uncategorized

Veni, vidi, vici!

Chris and Doris travelled with their two little children from Austria to join us in Rome. This is what they thought.

Posted in 2016, Conference, News

Rome conference presentations

Some of the presentations from Rome are now available for download.

Posted in 2016, Conference

Gallery is getting fuller

The conference images are finally starting to be put into our gallery. The images were taken by the fantastic Catherine Underhill, and you can contact here directly for larger images and prints. You can reach Catherine at  

Posted in 2016, Conference


We could never hope to run our conferences without the imagination and perseverance of many friends and families. All sorts of fundraisers have been held over the past year, from Mount Snowdon Climb, serving teas at concerts, sponsored haircuts, raffled

Posted in 2016, Fundraiser, News

Dr Vizziello’s session title confirmed

Dr Vizziello’s session on Sunday 7 at 09:45 has been confirmed and will be titled “Sleep Disorder and roundabout to face family disorganisation”.

Posted in 2016, Conference

Rome conference latest

Some latest news about attendees.

Posted in 2016, Conference, News

Conference programme finalised

The conference programme is now finalised

Posted in 2016, Conference