Latest Newsletter

Newsletter Spring 2017

Posted in Uncategorized

Tetrasomy 18p Get Together

Just letting you know about a get together for Tetrasomy 18p families on the  2-4th June, details on this Facebook page.

Posted in Events, Uncategorized

European Commission approves 23 European Reference Networks

On 15th December the Board of Member States of ERNs voted to approve all 23 ERN proposals submitted under the first wave (the 24th proposal, submitted under the 2nd call, will be assessed early in 2017).

Posted in News