Rome conference best yet!
Our fourth conference closed last Sunday. Thanks so much to everyone who helped make it such a fantastic event.
See you in two years!
Dr Vizziello’s session title confirmed
Dr Vizziello’s session on Sunday 7 at 09:45 has been confirmed and will be titled “Sleep Disorder and roundabout to face family disorganisation”.
Rome conference latest
Some latest news about attendees.
Conference programme finalised
The conference programme is now finalised
Draft conference schedule
The initial conference schedule has been published.
Welcome to the Chromosome 18 Registry and Research Society (Europe). We are affiliated to the Chromosome18 Registry and Research Society based in San Antonio, Texas. Our mission is to help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead happy, healthy and productive lives.
We aim to bring the latest research done by the Chromosome 18 Registry and Research Society in Texas to people affected by all chromosome 18 disorders and their families in Europe. To do this, we run family conferences where affected children and adults, parents, siblings, relatives, friends and professionals get together to laugh, learn and play together.
Who Are We?
The Chromosome 18 Registry and Research Society (Europe) is a charity set up to bring European families affected by any chromosome 18 abnormalities together to share information and experiences. Our organisation covers all chromosome 18 abnormalities: 18q-, 18p-,Ring 18,Tetrasomy 18p and inversions of chromosome 18.
The charity was founded by an affected woman, her mother and the grandparents of a young boy, all of whom lived near Glasgow. The organisation was registered as a charity in Scotland in 2009 (SC040399). We now have a committee of eight volunteers, all of whom are related to people affected by Chromosome 18 disorders.