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Conference Group

Image: Catherine Underhill

Welcome to the Chromosome 18 Registry and Research Society (Europe).

We are affiliated to the Chromosome18 Registry and Research Society based in San Antonio, Texas. Our mission is to help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead happy, healthy and productive lives.

We aim to bring the latest research done by the Chromosome 18 Registry and Research Society in Texas to people affected by all chromosome 18 disorders and their families in Europe. To do this, we run family conferences where affected children and adults, parents, siblings, relatives, friends and professionals get together to laugh, learn and play together.

Glasgow Conference 2018

If you are coming to the conference in Glasgow on 22-24 June, please complete your conference booking by clicking on the link here. If you have any questions, please feel free to contact us!

Conference Booking

If you would like to stay in the Glasgow Doubletree Hilton over the conference this year, you can book using this link which will give you a discount over the usual room rate. Click here to book

Newsletter – January 2018

You can download the latest newsletter, which contains details of the Glasgow conference in June, by clicking or tapping here.

 


Glasgow Conference 2018

If you are coming to the conference in Glasgow on 22-24 June, please complete your conference booking by clicking on the link here. If you have any questions, please feel free to contact us!


Conference Booking

If you would like to stay in the Glasgow Doubletree Hilton over the conference this year, you can book using this link which will give you a discount over the usual room rate. Click here to book


Newsletter – January 2018

You can download the latest newsletter, which contains details of the Glasgow conference in June, by clicking or tapping here.


Virgin Giving

Please consider donating whatever you can afford to help us continue supporting children and adults with Chromosome 18 conditions in Europe. You can donate using credit card or Paypal via Virgin Giving by clicking here.


Latest Newsletter

Newsletter Spring 2017


Who Are We?

The Chromosome 18 Registry and Research Society (Europe) is a charity set up to bring European families affected by any chromosome 18 abnormalities together to share information and experiences. Our organisation covers all chromosome 18 abnormalities: 18q-, 18p-,Ring 18,Tetrasomy 18p and inversions of chromosome 18.

The charity was founded by an affected woman, her mother and the grandparents of a young boy, all of whom lived near Glasgow. The organisation was registered as a charity in Scotland in 2009 (SC040399). We now have a committee of eight volunteers, all of whom are related to people affected by Chromosome 18 disorders.

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